Life's definitely thrown us some curveballs this fall. In early September, our oldest son had a scheduled tonsillectomy, adenoidectomy, and ear tube surgery (his 4th) after having recurrent strep every few weeks for months. By mid-September when he was finally recovered from the pain of that surgery, we received news that was like a punch in the gut. Our little guy's immune system was shutting down for reasons no one could explain. We already knew he (like myself) had a form of Primary Immunodeficiency and he has definitely been symptomatic since infancy, but this was significantly worse news. He had converted into a more significant form of PI called Common Variable Immune Deficiency (CVID) and was basically missing two immunoglobulins and low in a third.
"Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance." - James 1:2-3
"Give thanks in all circumstances."- 1 Thessalonians 5:18
We were deeply troubled by the news, but we had to make a decision yet again-- one we've faced several times before-- would we allow bitterness, anger, sadness, and disease to dominate our lives? Or would we continually choose to be joyful and thankful? Let's be honest- it's a struggle sometimes. But we choose the latter. We have to choose it every day. An early diagnosis and treatment means potentially avoiding 8-10 years of unexplained illnesses, hospitalizations, and potentially organ damage. We made the decision to press in even further to God, keep believing and praying fervently for complete healing, and pray God could use our family to somehow bring hope to others who might also be going through a similar medical trial with their children. It was a relatively easy decision to begin him on gamma globulin replacement therapy for a few years and then get retested. I have been doing this for 10 months and it's made a tremendous difference. However, we knew it wasn't going to be easy and we have had many ups and downs as we've begun weekly infusion treatments the past 6 weeks.
My health has been so incredibly good since beginning treatment that my mom nicknamed me the "Bionic Woman." I'll admit, I was starting to feel invincible as I saw myself escaping minor sicknesses I would have caught before and turned into yet another pneumonia. It's so easy to get complacent and so wrapped up in other things, you forget to continue praying for full healing and completely relying on God instead of a treatment or doctors.
Then, I woke up one day hardly able to walk. My entire knee was hot, swollen, and full of fluid. I had a bad, bad feeling it was serious. I went right to urgent care and called my immunologist and they both agreed that it might be serious and sent me to the ER. After a few days of being in and out of two ER's and a hospital admission (they kept saying it was only inflammation), it was finally discovered I had a septic bursitis infection which had turned into an abscess and needed knee surgery and sustained IV antibiotics every 8 hours. I was in the hospital another 2 and a half days for surgery and then came home to maintain home health care through nurses and IV treatment at home.
If I'm honest, it seems like the trials just won't end. But then I look around and I see one of my best friends going through something heart-wrenchingly difficult. She called me in the hospital and ended up encouraging me with the supernatural strength God's given her to keep carrying on joyfully.
"By this everyone will know that you are my disciples, if you love one another." - John 13:35
We live in a society where it's countercultural and radical to lay down our lives, our schedules, our time, and our talents for others to get nothing tangible in return. But this is truly where Christians can demonstrate the heart of the gospel. As we go into Thanksgiving, I can't help but reflect on the AMAZING help and blessings we've received throughout this tough season. Meals have poured in while I was in the hospital and even now while recovering at home. Busy fellow moms and homeschool moms taking in my 3 young children to spend entire days or overnight with their families. I cried in the hospital seeing pictures of my kids smiling at the park or painting turkey crafts or playing dress-up with these special friends who were treating my own children as their own when I couldn't be there. A dear friend whose own children are grown coming over to read books on the sofa, build block towers, and just love on my little ones. A friend who sent my sons flying to the moon jumping on the trampoline with them. Multiple friends coming over to clean house, do laundry, fold laundry, put away laundry (you get the point- there has been a LOT of laundry!). Friends visiting in the hospital and brought special treats or coming to my home when nurses were here. An entire family who came one day to help with one of Elliott's infusions while Ben was out of town.
We've been down to one car for almost a month as Ben's car has had numerous problems and he hasn't ever had the dedicated time to fix it. A friend volunteered to come over and help fix the car on a Saturday. He brought another friend who we'd never even met. They spent all day into the night working to fix his car. The friend we didn't even know told Ben at this end of the day, "Thank you for giving us the opportunity to help you today. It's an honor to be able to serve others." He was totally genuine. Totally sincere.
What if we all had that attitude? What could the body of Christ look like? I'll tell you what-- I hope anyone who is on the outside looking into my life can see God's love in action. I know I can. It is the gospel in action. We are humbled. We are thankful.